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Our story
Our Mission
Our Mission
William Herschel Johnson (named after his great-grandpops) was born on Sunday, August 1, 2021 and in the 23 days he was with us, he changed our hearts and our lives forever. On Friday, August 20, we met with Liam’s team of doctors and received his diagnosis of Early Infantile Epileptic Encephalopathy. We learned that he would not recove
William Herschel Johnson (named after his great-grandpops) was born on Sunday, August 1, 2021 and in the 23 days he was with us, he changed our hearts and our lives forever. On Friday, August 20, we met with Liam’s team of doctors and received his diagnosis of Early Infantile Epileptic Encephalopathy. We learned that he would not recover and our days were limited. We may never understand why this happened to us, but we do know that we are stronger because of this, that each day is a gift, and that we have a new sense of purpose – to help the incredible staff at the Children's Hospital of Philadelphia. Thank you for helping us make this possible.
Our Mission
Our Mission
Our Mission
Our mission is to raise awareness for pediatric epilepsy, raise funds to support research and treatment for genetic epilepsy, and to support families with children with epilepsy.
ENGIN
Our Mission
ENGIN
The Epilepsy Neurogenetics Initiative (ENGIN) at the Children’s Hospital of Philadelphia (CHOP) is committed to providing comprehensive and individualized care for children with epilepsy. They are leaders in the field of epilepsy genetics and offer every child seen unparalleled access to diagnostic genetic testing, an individualized trea
The Epilepsy Neurogenetics Initiative (ENGIN) at the Children’s Hospital of Philadelphia (CHOP) is committed to providing comprehensive and individualized care for children with epilepsy. They are leaders in the field of epilepsy genetics and offer every child seen unparalleled access to diagnostic genetic testing, an individualized treatment plan, and enrollment in their innovative research studies. In Liam's memory, each donation will go to this incredible team.
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